Blogspot - averycan.blogspot.com - Avery's Bucket List
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For Avery's 2nd Birthday... 31 May 2013 | 04:10 am
I Think We'll Make Her A BIG Sister! Avery's lil' sibling due in November 2013 Avery aka "Big Sis" at 1 Day old. Thank you again for loving Avery and for your immense support. We ask that you plea...
Excellent news in the fight against SMA! 23 Mar 2013 | 10:20 pm
Families of SMA and Nationwide Children's hospital have agreed to a 3-year cooperative agreement in the amount of $3,752,462 to help further fund pre-clinical drug development of Dr. Brian Kaspar's Ge...
Help Families of SMA 9 Mar 2013 | 11:26 pm
Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely...
Update On Dr. Kaspar's Gene Therapy Program 5 Dec 2012 | 08:00 am
This afternoon, the Recombinant DNA Advisory Committee (RAC) unanimously voted YES to Dr. Kaspar's Gene Therapy program moving forward to the FDA for final approval. This is one HUGE step forward towa...
Happy 1st Birthday 11 Nov 2012 | 10:40 pm
HAPPY BIRTHDAY AVIATOR! Oh the things we could have done today, on your first birthday... We could have opened gifts and eaten sweets... Danced with puppies or gotten a tattoo, in celebration of yo...
Call For Action (Please Help Get This Act Passed Through the U.S. Senate) 22 Sep 2012 | 06:11 am
This is a call for action for you to please help get The National Pediatric Research Network Act (NPRNA) passed by the U.S. Senate. As to make this as simple as possible for you, at the end of this b...
Important Legislative Update 21 Sep 2012 | 06:58 pm
Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely...
111 Days Later, 1 BIG Bucket List Accomplishment! 20 Aug 2012 | 08:13 am
Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely...
A Day For Avery (Quite the Ending To an Amazing Game!) 15 Aug 2012 | 02:01 am
Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely...
Upcoming Event: A Day For Avery at the Ballpark (August 13, 2012) 14 Aug 2012 | 10:36 pm
Please continue to share Avery's story by updating your social networks, e-mailing all of your contacts, and talking to your friends/co-workers. The more people who are aware of SMA, the less likely ...
