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Walkmans I have loved 26 Aug 2013 | 09:07 am
My first one was back in the early 80's. It might have even been in the late 70's when I was still in the single digits. I had found $75 dollars on the street during a walk when I went to kick a brown...
The Drummer Is Always The Coolest 13 Aug 2013 | 08:40 pm
A little photo montage of Simon drumming away and rocking the sparkly headband... Want to contact us directly? Email [email protected] or [email protected]
Fifth Anniversary 1 Aug 2013 | 07:28 pm
Today marks the 5th anniversary since Simon got his diagnosis. What a long, long, LONG way we've come... From this To this. It is a miracle made possible by love and hope and prayers and help and....
The Hulk 23 Jul 2013 | 08:43 am
Lately, I pretty much forget that Simon has extra stuff going on. Then, we have moments like tonight and I am reminded that we are doing "parenting plus". He's been on a kick the last few days where...
That Mom part 3 16 Jul 2013 | 11:25 pm
There is that Mom. The one across the Bay that said goodbye to her 8 month old baby last night. There is also that mom, the one across the country in Florida who might have been holding out for some s...
Commentary For the Times- Not So Much Shimmy But It's All Connected 6 Jul 2013 | 01:21 am
A while ago a dear friend asked us to be guest writers on her blog. Jaime was able to contribute something but I'd been a little busy with Simon and chaplaincy and life. Last week with the Supreme Cou...
Healing 8 Jun 2013 | 05:51 pm
Simon went under general anesthsia today for the first time since he was a critically ill baby in the ICU. The idea of him going under general scared the bejeezus out of Laura and I even though he's ...
Gratitude Sucks 2 May 2013 | 10:14 am
We just got back from 2 days at Children's Hospital Orange County. We went down so Simon could be assessed to see if he is a good candidate for a 3-week inpatient feeding therapy program. He is. He...
Seismic Shift 25 Apr 2013 | 10:57 am
As a resident of California, I half-expect a life altering earthquake to happen at any given moment. I walk around with my ears tuned for the low rumble that signals earth-shattering movement. A few w...
Five! 9 Apr 2013 | 07:54 pm
Birthday! Hangin' with my Auntie Jen Getting check out by our midwife One Year Old Auntie Dre! With my sister! Great Aunt Ellie Cousin Maya MM is so lovely! We share a birthday but I get the ...