Checkorphan - checkorphan.org - iWishes
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Myopathy- Myotubular 9 Mar 2013 | 11:27 pm
My wish this year is that people around the world will take part in The Big Sunflower Project 2013 and grow a sunflower to raise awareness of centronuclear and myotubular myopathy. My father and I we...
Myopathy- Myotubular 9 Mar 2013 | 11:27 pm
My wish this year is that people around the world will take part in The Big Sunflower Project 2013 and grow a sunflower to raise awareness of centronuclear and myotubular myopathy. My father and I we...
Myopathy- Myotubular 9 Mar 2013 | 11:27 pm
My wish this year is that people around the world will take part in The Big Sunflower Project 2013 and grow a sunflower to raise awareness of centronuclear and myotubular myopathy. My father and I we...
Williams Syndrome 12 Dec 2012 | 07:32 am
Inspired by my youngest son, Keith, age 9, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation with the vision of providing financial assistance a...
Williams Syndrome 12 Dec 2012 | 07:32 am
Inspired by my youngest son, Keith, age 9, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation with the vision of providing financial assistance a...
Williams Syndrome 12 Dec 2012 | 07:32 am
Inspired by my youngest son, Keith, age 9, who was diagnosed with Williams syndrome and Autism, I formed Williams Syndrome Changing Lives Foundation with the vision of providing financial assistance a...
Giant Axonal Neuropathy 24 Sep 2012 | 01:31 pm
In March of 2008, Lori Sames learned that her daughter, Hannah, then age four, had Giant Axonal Neruopathy. GAN a rare genetic disorder that slowly takes away one's ability to walk, use one's hands,....
Giant Axonal Neuropathy 24 Sep 2012 | 01:31 pm
In March of 2008, Lori Sames learned that her daughter, Hannah, then age four, had Giant Axonal Neruopathy. GAN a rare genetic disorder that slowly takes away one's ability to walk, use one's hands,....
Giant Axonal Neuropathy 24 Sep 2012 | 01:31 pm
In March of 2008, Lori Sames learned that her daughter, Hannah, then age four, had Giant Axonal Neruopathy. GAN a rare genetic disorder that slowly takes away one's ability to walk, use one's hands,....
Sanfilippo Syndrome 27 May 2012 | 12:30 am
This sweet boy on my brother Rick's lap is his son Jared. My nephew Jared is a wonderful, happy 7 year old boy. Unfortunately, he was diagnosed with Sanfilippo Syndrome when he was just 2 years old....
