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Consultation WHO Disability Action Plan 21 Aug 2013 | 02:32 pm
21 July 2013 // As part of the process of developing an action plan to ensure better health for people with disabilities, WHO has launched an online consultation process until 11 October 2013. The dra...
Positive EFSA opinion on Folic Acid Health Claim 30 Jul 2013 | 02:32 pm
30 July 2013 // The European Food Safety Authority (EFSA) has issued a favourable opinion on the use of supplemental folate to reduce the risk of neural tube defects (NTD) such as spina bifida and ane...
Highly specialised care rated "very important" in the implementation of European Reference Networks 26 Jul 2013 | 01:07 pm
26 July 2013 // IF and four of its member organisations participated in a public consultation on the implementation of ERN. The consultation was held by DG Health and Consumers, to assist the European...
European Parliament released a study on member states' policies for children with disabilities 24 Jul 2013 | 01:55 pm
24 July 2013 // A comparative report requested by the European Parliament's Committee on Civil Liberties, Justice and Home Affairs looks at the policies to promote the rights of children with disabili...
IF at 6th session of the Conference of States Parties to the CRPD 19 Jul 2013 | 03:17 pm
19 July 2013 // IF took part in the pre-conference Civil Society CRPD Forum coordinated by the International Disability Alliance with the support of Disabled People’s International, Disability Rights ...
Pierre Mertens receives IF Award 2013 1 Jul 2013 | 03:57 pm
It was the unanimous decision of the rest of the IF Board that the person most deserving of the IF Award 2013 is outgoing IF President Pierre Mertens. When his daughter Lies was born with Spina Bifida...
IF elects new board members and president 29 Jun 2013 | 03:57 pm
During its General Assembly held in Izmir, the International Federation for Spina Bifida and Hydrocephalus (IF) elected Margo Whiteford as its president for the 2013-2015 period. She succeeds Pierre M...
Global expansion of the IF Network 29 Jun 2013 | 01:57 pm
This year, 4 organisations expressed the wish to join the IF network and applied for IF membership. During IF's General Assembly the expansion of the IF Network was approved by welcoming the following...
IF's 24th International Conference "Unite & Share" 11 Jun 2013 | 01:06 pm
IF's 24th International Conference will take place on June 28 and 29 in Izmir, Turkey. The conference will be hosted by IF's member organisation from Turkey, Spina Bifida Dernegi. Both healthcare prof...
Milestone meeting towards a better future for people with SB/H in China 5 Jun 2013 | 11:41 pm
The China Disabled Persons' Federation (CDPF) and IF met to evaluate further action for persons with Spina Bifida and Hydrocephalus (SB/H) in China. CDPF Vice Chairperson Mr Lu Shiming expressed his a...
